Your Questions, Answered

This page answers common questions about Sickle Cell Shine Initiative, our role, and how we work.

  • Sickle Cell Shine Initiative (SCSI) is a community-led initiative focused on raising awareness, centring lived experience, and advocating for equitable care for people living with Sickle Cell Disorder in the UK.

  • No.

    Sickle Cell Shine Initiative is not a hospital, clinic, medical practice, or healthcare provider.

    We do not offer medical advice, diagnosis, treatment, or clinical services.

  • No.

    We are unable to provide medical advice or support during a crisis.

    If you or someone you care for is unwell or in pain, please contact NHS services, your specialist team, or emergency services as appropriate.

  • Our work focuses on awareness-raising, community engagement, advocacy, and relationship-building.

    We aim to amplify lived experience, challenge stigma, and contribute to conversations and initiatives that improve understanding and equity in Sickle Cell care.

  • Our work centres on people living with Sickle Cell Disorder, as well as families, carers, healthcare professionals, community organisations, and allies who are committed to improving understanding and outcomes related to SCD.

  • Sickle Cell Shine Initiative is currently in the process of formalising its registration as a Community Interest Company (CIC).

  • At this time, we are not accepting donations.

    Once our registration is complete, we will share clear information about how people can support our work.

  • Currently, SCSI does not offer paid services, consultancy, or formal training.

    Any conversations at this stage are exploratory and focused on learning and collaboration.

  • If you are interested in learning more or exploring collaboration, you can schedule a conversation via the Work With Us section of our website or contact us directly.

  • You can stay connected by joining our mailing list or following us on Instagram for updates and announcements.